Watch your lifestyle: In order to limit the risk of infection, it is very important to have a rigorous hygiene (dental, skin care, prevention of mycosis) In addition, it is necessary to monitor its diet, some products may cause disruption unpleasant. To live in harmony with oneself, one must learn to take care of one's body, to love oneself in some way. In lupus it is common to have a fatigue that can be permanent or intermittent. In the latter case, a job is possible but it is prudent to provide the possibility of rest time.
Living with lupus
Lupus is a chronic disease that can last for years or even decades. In general, the evolutionary pattern alternates thrusts and periods of remission. At each thrust, some body systems are affected and appropriate treatment can calm the lesions. Once the push is over, the treatment must be reduced gradually: it is the transition from attack treatment to maintenance treatment. Treatment reduction should be cautious to limit the risk of relapse. The goal is to achieve long-term remission with mild and tolerable maintenance therapy. As in any chronic disease, it is important that a patient with lupus has family, social and medical support. In particular, it is useful to to have an attentive generalist ready to face the daily worries, and a hospital specialist well-acquainted with lupus, capable of triggering an attack treatment when needed and to see if a new medical problem is indeed a lupus flare-up ( which may not be the case). It is natural that the sick seek information. It is better to ask health professionals specialized in lupus than to books, dictionaries and newspapers that are often out of date, as well as on websites.
Currently, no medicine can claim to cure but it is quite normal for patients to seek any other information that can help to counter the advance of lupus disease.In terms of information, an association of patients can bring since she is in contact with the specialist doctors of the Centers of Reference and Competence of autoimmune diseases including lupus.
Lupus and the Sun
The Sun has always been honored in ancient civilizations. He is the god who gave life to all things. We continue to worship him, going to expose ourselves under his shelves, forgetting voluntarily or involuntarily the harm he can bring if we do not take a minimum of precautions.
The Sun is a friend or an enemy. We feel the infrared by the feeling of heat they give but not the ultra-violet hiding behind.
There are three types of ultraviolet rays:
- UVA rarely gives sunburns but their action is deep, contributing to premature wilting of the skin. They are responsible for some photo-allergies,
- UVB causes sunburn, skin aging and skin cancer,
- UVCs are the most harmful for skin cells, but they are normally retained by the ozone layer.
Effects of the Sun
The sunburn is a burn, often superficial, due to exposure of the skin to ultraviolet radiation. If it is moderate, it results in a redness with sensitivity of the skin and sensation of abnormal heat that will give way later to tanning when the skin seeking to protect itself against future attacks, will produce melanin.
On the other hand, if the sunburn is important, it will give rise initially to a painful sensation, to phlyctenes (blisters filled with serosity) and, in a second time, to the elimination of the cells of the stratum corneum. the skin (desquamation).
If the exposure to the sun has been too long, it can lead to a number of more or less serious disorders, such as an inflammatory condition of the skin, fatigue, fever, weight loss, cancer, tuberculosis.
For a person affected by an autoimmune disease, simple exposure can cause disturbances because ultraviolet light increases the activity, not only of the skin disease but also the internal systemic disease. This is valid for all skin types. The harmful consequences of the sun on the disease may not be immediate but occur after the summer period.
Protections
The best behavior that can be recommended is prudence. There is no question of totally and permanently prohibiting any sun exposure or any outdoor sports activity. However, during outbreaks, exposure to direct radiation (drivers of cars driving the arm to the door) and reflective (water, sand, snow) should be avoided.
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